Programs that empower patients and patient organizations to improve awareness, accelerate early diagnosis, be informed of treatment options and advocate for true shared decision making, drive integration of patient voice in health technology assessments, address inequities in care for underserved groups including women and advocate for individualized care that addresses holistic and quality of life needs in one of the areas below or collectively as rare diseases.
Programs that address identified needs in ANCA vasculitis (AAV), IgA nephropathy (IgAN) and Iron Deficiency such as awareness of disease burden including healthcare utilization, accelerate diagnosis, improve education and management to improve patient care.


